I regarded finding I had a form of Alzheimer's as an insult and decided to do my best to marshal any kind of forces I could against this wretched disease. I have posterior cortical atrophy or PCA. They say, rather ingenuously, that if you have Alzheimer's it's the best form of Alzheimer's to have.
If I had been Terry Pratchett the farmer, or Terry Pratchett the dentist, nobody would have paid any attention if I had announced I had Alzheimer's. But there is something fascinating about an author losing the power over words.
The best thing I ever did with my life was stand up and say I've got Alzheimer's.
I know three people who have got better after a brain tumour. I haven't heard of anyone who's got better from Alzheimer's.
It seems that when you have cancer you are a brave battler against the disease, but when you have Alzheimer's you are an old fart. That's how people see you. It makes you feel quite alone.
Before you can kill a demon, you have to be able to say it's name. Names have power. While the word Alzheimer's terrorizes us, it has power over us. When we are prepared to discuss it aloud, we might have power over it. It's thought of as a mental illness and it is a physical illness, affecting the brain. There should be no shame in having it, yet people still don't talk about it
There is a rumour going around that I have found God. I think this is unlikely because I have enough difficulty finding my keys, and there is empirical evidence that they exist.
It's the end game that people dread and that's what I'm scared of